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Haemophilia Xplained

Through storytelling

Watch the latest additions to Haemophilia Xplained series as we follow Ben on how he manages his haemophilia.

Meet Ben

Hi, I'm Ben! I'm 25 years old, I live in Melbourne with my fiancé, Sam, and our pet lizard Baz and, hopefully, soon I will finally stop being a student and start working as a teacher! My parents knew when I was born that there was a fairly good chance that I would have haemophilia so I was diagnosed with moderate haemophilia A pretty much as soon as I was born. Living with haemophilia definitely has its challenges; I remember having to sit out of a lot of things growing up because they were too dangerous or because I had a bleed, and I felt really left out a lot of the time. There was a point though where I decided to take control of my life and with the help of family, friends and my medical team I have done so many things that I never before would have believed possible for me!

Read Jamie and Mark’s separate stories as they take us on their journeys through haemophilia and personalised treatment.

Meet Jamie

Hey, I’m Jamie… 35 years old and married with 3 kids, so you could say I’m just a regular guy. But I was diagnosed with severe haemophilia A when I was 2 years old and didn’t stop bleeding when I fell over and hit my mouth.
Life has been pretty tough, especially when I was a kid being told to take it easy and not play sports. The hardest thing for me is accepting that having a serious medical condition that makes me different. It wasn’t until I was about 19 that I really started to accept that this is my life, and now I’m taking things into my own hands.

Today, my motto is “go hard or go home’.

Medicine X Story

Working as a medical doctor, I realised that far too many patients are confused about their diagnoses, their conditions, and their treatments. There’s a disconnect between the language that doctors use and what everyday people understand. This can make you feel incredibly hopeless and anxious at an often very difficult time in your life.

We believe there is a better way. We believe all patients – regardless of age, gender, culture or condition – should have access to medical information they can understand! Everyone should feel informed and empowered in order to engage with their doctors and be involved in making medical decisions.

This is why Medicine X was created.

Signature

Dr. Kim Chilman-Blair
Founder, Medicine X

About Haemophilia Xplained

Real People

The Haemophilia Xplained stories and videos are people, reflecting their stories, experiences and advice. Thanks to everyone who helped create the Haemophilia Xplained series!

Our Team

The Medicine X team are doctors, artists, and creative writers who all work to make sure of one thing — the information is easy to understand. No more medical jargon! Our team has worked to ensure that you get information that is correct and up-to-date.

Experts

Each of the stories we create is different, so there are experts from relevant medical bodies and institutions that have reviewed the story to ensure it is spot on in terms of medical information. These experts are professionals from all across Australia.

Don't Take Our Word For It

Here’s what others are saying about the Haemophilia Xplained and Pharmacokinetics (PK) Xplained stories

I thought the story line, combined with all the complex information, works well.

Great job. A lot of really good information in here.

This is a really cool way to explain it.

I wish I’d had something like this growing up!

Experts involved in Haemophilia Xplained

A collaborative community effort.

A wide community contributed to Haemophilia Xplained and Pharmacokinetics (PK) Xplained. We involved medical experts, relevant medical bodies, and institutions. The story was then peer reviewed and shared with a focus group of people with haemophilia to help evolve and optimise the content. Thank you to all involved!

Haematologist

Dr James Price

Haematologist

Dr John Rowell

Haematologist

Dr Jane Mason

Haematologist

A/Prof Huyen Tran

Nurse

Janine Furmedge

Nurse

Megan Walsh

Nurse

Helen Starosta

Nurse

Penny McCarthy

Haemophilia Counsellor

Sharon Hawkins

Senior Social Worker

Leonie Mudge

Physiotherapist

Abi Polus

Bleeding Disorder Co-ordinator

James Slade

HFA

Sharon Caris

HFA

Suzanne O'Callaghan

HFA

Hannah Opeskin

Our Partners

Medicine X would like to thank their sponsors Takeda Australia and Partner Haemophilia Foundation Australia for their collaboration on Haemophilia Xplained. Medicine X would also like to thank Shire Australia (now part of Takeda) for their collaboration on Pharmacokinetics Xplained.

Haemophilia Foundation Australia

Haemophilia Foundation (HFA) is the national peak body that represents people with haemophilia, von Willebrand disorder and other inherited bleeding disorders, and their families through: Representation and Advocacy, Education and Research.

haemophilia.org.au

Takeda

Takeda is a patient-focused, values-based, R&D-driven global biopharmaceutical company committed to bring Better Health and Brighter Future to people worldwide. Our passion and pursuit of potentially life-changing treatments for patients are deeply rooted in our distinguished 238-year history in Japan.
Shire Australia Pty Limited is now part of Takeda.
Grosvenor Place, Suite 3901, Level 39/225 George St, Sydney, NSW 2000 Australia

takeda.com

The information provided by Medicine X is of a general nature and is not meant to be exhaustive or apply to your specific medical needs. Any information shouldn’t substitute or overrule the advice, diagnosis or treatment suggested by your doctor. Never disregard professional medical advice or delay in seeking it because of something you have read on Medicine X websites, apps, email communications or in our communities. If you think you may have a medical emergency, call your doctor or emergency services immediately.

If you are engaging with Medicine X please note that you’re agreeing to our Terms and Conditions and our Privacy and Data Policy.

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