What is Haemophilia
Haemophilia Xplained is a digital flip-through story, that explains all about symptoms, treatments, and the emotional roller coaster that comes with living with haemophilia… all without the medical jargon and “doctor speak”. Haemophilia Xplained follows Mark’s journey with haemophilia in an engaging, informative and entertaining story.
Pharmacokinetics (PK) Xplained, is told by Jamie, a real guy living with Haemophilia. It follows on from Haemophilia Xplained to describe how your treatment can be personalised to you and your lifestyle.
Download or view the stories to learn about haemophilia today.
Based on real life patient journeys
WRITTEN BY Professionals
Written by doctors for up to date and
PEER REVIEWED BY EXPERTS
Reviewed by doctors, specialists
INPUT FROM OUR COMMUNITY
Shared with a focus group of patients with
haemophilia for first hand experience.
Download or view Haemophilia Xplained Now
Hey, I’m Jamie… 35 years old and married with 3 kids, so you could say I’m just a regular guy. But, I was diagnosed with severe haemophilia A when I was 2 years old and didn’t stop bleeding when I fell over and hit my mouth. Life has been pretty tough, especially when I was a kid being told to take it easy and not play sports. The hardest thing for me is accepting that having a serious medical condition that makes me different. It wasn’t until I was about 19 that I really started to accept that this is my life, and now I’m taking things into my own hands.
Today, my motto is “go hard or go home”.
“I thought the story line, combined with all the complex information, works well.”
“Great job. A lot of really good information in here.”
“This is a really cool way to explain it.”
“I wish I’d had something like this growing up!”
Living with haemophilia, explained through storytelling. Download your free app today.
A COLLABORATIVE COMMUNITY EFFORT
A wide community contributed to Haemophilia Xplained and Pharmacokinetics (PK) Xplained. We involved medical experts, relevant medical bodies & institutions. The story was then peer reviewed & shared with a focus group of people with haemophilia to help evolve & optimise the content. Thank you to all involved!
Medicine X would like to thank their sponsors Shire Australia and partner Haemophilia Foundation Australia for their collaboration on Haemophilia Xplained. Medicine X would also like to thank Shire Australia for their collaboration on Pharmacokinetics Xplained.
Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disorder and other inherited bleeding disorders, and their families through: Representation and Advocacy, Education & Research.
To find out more about Haemophilia Foundation Australia (HFA) visit
Shire is the leading global biotechnology company focused on serving people with rare diseases and other highly specialized conditions. Our focus is on a core of rare disease programs within the therapeutic areas of haematology, immunology, genetic diseases and oncology. Our knowledge and experience extends to highly specialized conditions in the fields of neuroscience, ophthalmics, gastrointestinal and internal medicine.
For more info about Shire Australia visit
About Medicine X
MEDICINE X IS MEDICINE XPLAINED BY DOCTORS, FOR PATIENTS
Medicine X translates complicated ‘doctor speak’ into an entertaining and engaging story – so that every person regardless of age, gender, culture and condition, can have access to medical information they can understand and relate to. Working as a doctor, Medicine X’s founder realised that many patients were confused about their diagnoses, and didn’t have a proper understanding of their conditions or treatments. There was a disconnect between the language that doctors use, and what patients understand. Because of this, many people feel hopeless and anxious at a very difficult time in their lives.
This is why Medicine X was created. We believe there is a better way. We believe all patients should feel informed and empowered so they can become engaged in their personal and medical decisions.
Medicine X connects the stories of real people with artists and medical experts, to turn complex medical information into stories that people can understand and relate to.
For more info about Medicine X visit www.medicinex.com