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HAEMOPHILIA XPLAINED written by doctors, for patients.

Psoriasis Xplained. Written by Doctros, for Patients.

What is Haemophilia
XPLAINED?

Medical jargon can be confusing, but we take away that confusion through storytelling. Haemophilia Xplained Part 1, follows Marks journey with haemophilia in an engaging, informative and entertaining story. Through this digital flip-through story, learn about symptoms, treatments, and the emotional roller coaster that comes with living with hemophilia. Download or view the story to learn about haemophilia today.

Haemophilia Xplained; Part 2, Pharmacokinetics (PK) Xplained, which follows the story of Jamie is coming soon! If you would like to know when it’s ready, click here to leave your details.

REAL EXPERIENCES

Based on real life patient journeys
with haemophilia.

WRITTEN BY Professionals

Written by doctors for up to date and
correct information.

PEER REVIEWED BY EXPERTS

Reviewed by doctors, specialists
and nurses.

INPUT FROM OUR COMMUNITY

Shared with a focus group of patients with
haemophilia for first hand experience.

Download or view Haemophilia Xplained XPLAINED Now

Meet David

David was diagnosed with prostate cancer in October 2011 following a routine annual blood test. He has two daughters and three granddaughters. He lives in the Blue Mountains with his wife Jan. He is president of the Nepean Blue Mountains Prostate Cancer Support group. He says that life has never come real easy for him but he believes in setting goals and persisting.

Reviews

“I love that analogy… ‘Hurdle, not a roadblock’. I will use that with my patients!”
“I thought I knew a lot about prostate cancer but after reading this I have a far greater understanding about the issues and treatment.”
“Simple step by step method and language.”
“It reinforces that things can change very quickly in life even if you are healthy and have regular check ups.”
“I found this so informative that I am booking a appointment with my doctor for a check up including a PSA test.”
“I think this App is easy to understand and relate to, it doesn’t go on to long. Very user friendly.”
“I thought the story line, combined with all the complex information, works well.”

DOWNLOAD APP

Living with haemophilia, explained through storytelling. Download your free app today.

Our Community

A COLLABORATIVE COMMUNITY EFFORT

A wide community contributed to Haemophilia Xplained Part 1. We involved medical experts, relevant medical bodies & institutions. The story was then peer reviewed & shared with a focus group of people with haemophilia to help evolve & optimise the content. Thank you to all involved!

Dr James Price
Dr John Rowell
A/Prof Huyen Tran
Janine FurmedgeNurse
Megan WalshNurse
Helen StarostaNurse
Penny McCarthyNurse
Sharon HawkinsHaemophilia Counsellor
Leonie MudgeSenior Social Worker
Abi PolusPhysiotherapist
James SladeBleeding Disorder Co-ordinator
Sharon CarisHFA
Suzanne O’CallaghanHFA
Hannah OpeskinHFA
Dr James Price
Dr John Rowell
A/Prof Huyen Tran
Janine FurmedgeNurse
Megan WalshNurse
Helen StarostaNurse
Penny McCarthyNurse
Sharon HawkinsHaemophilia Counsellor
Leonie MudgeSenior Social Worker
Abi PolusPhysiotherapist
James SladeBleeding Disorder Co-ordinator
Sharon CarisHFA
Suzanne O’CallaghanHFA
Hannah OpeskinHFA

Our Partners

Medicine X would like to thank their sponsors Shire Australia and partner ‘Haemophilia Foundation Australia for their collaboration on Haemophilia Xplained.

Haemophilia Foundation Australia (HFA) is the national peak body that represents people with haemophilia, von Willebrand disorder and other inherited bleeding disorders, and their families through: Representation and Advocacy, Education & Research.

To find out more about Haemophilia Foundation Australia (HFA) visit
www.haemophilia.org.au

Shire is the leading global biotechnology company focused on serving people with rare diseases and other highly specialized conditions. Our focus is on a core of rare disease programs within the therapeutic areas of haematology, immunology, genetic diseases and oncology. Our knowledge and experience extends to highly specialized conditions in the fields of neuroscience, ophthalmics, gastrointestinal and internal medicine.

For more info about Shire Australia visit
www.shireaustralia.com.au

About Medicine X

MEDICINE X IS MEDICINE XPLAINED BY DOCTORS, FOR PATIENTS
Medicine X translates complicated ‘doctor speak’ into an entertaining and engaging story – so that every person regardless of age, gender, culture and condition, can have access to medical information they can understand and relate to. Working as a doctor, Medicine X’s founder realised that many patients were confused about their diagnoses, and didn’t have a proper understanding of their conditions or treatments. There was a disconnect between the language that doctors use, and what patients understand. Because of this, many people feel hopeless and anxious at a very difficult time in their lives.

This is why Medicine X was created. We believe there is a better way. We believe all patients should feel informed and empowered so they can become engaged in their personal and medical decisions.

Medicine X connects the stories of real people with artists and medical experts, to turn complex medical information into stories that people can understand and relate to.

For more info about Medicine X visit www.medicinex.com

Copyright 2017 Medicine X

In accordance with the information standard, the editorial content is written independently of the sponsor and judged free of any conflict of interest. The information in the app is of a general nature and is not intended as a substitute for professional health advice. Nobody should act in reliance on any statement contained on this website and all persons should always obtain specific advice from a health professional. Medicine X Ltd has made reasonable efforts to ensure that the health information contained on this website is accurate and up to date. To the extent permitted by law, medicine X limited, its employees and agents accept no liability (even if negligent) for any injury, loss or damage caused by reliance
For a full list of references please forward enquires to: amandalangerak@medicinex.com

Acknowledgements

A huge thanks to all that have contributed to Haemophilia Xplained!

Reviewers:

Young people with haemophilia
Hamish Robinson, NSW
Dale Spencer, WA

Haemophilia Foundation Australia (HFA)
Sharon Caris, (BA(Hons) BSocWk MHlthAdmin), Executive Director,
Suzanne O’Callaghan (BA(Hons) GradDipEd GradDipInfoServ MWomensHlth), Policy Research and Education Manager
Hannah Opeskin (B PHHlthProm), Health Promotion Officer

Expert health professionals

Dr James Price (MBBS FRACP FRCPA), Clinical Haematologist, WA
Dr John Rowell (MBBS FRCPA MBA GAICD), Director of Haematology, QLD
James Slade (BN GCCanNurs MNNP), Bleeding Disorder Co­Ordinator, ACT
Helen Starosta (BNurs, MNurs (AdvClinNurs)), Haematology Clinical Nurse Consultant, TAS
A/Prof Huyen Tran (MBBS (Hons) Master Clin Epi FRACP FRCPA), Director Haemophilia Treatment Centre, VIC
Megan Walsh, (RN RM), Clinical Nurse Consultant, Haemophilia Centre, Vic
Janine Furmedge, (BNurs, MNurs (AdvNursPrac), PGradDipGenCouns)), Haemophilia Nurse Co-ordinator, VIC
Sharon Hawkins, (B Soc Work), Haemophilia Counsellor, WA
Penny McCarthy, (BSc (Hons) RN Grad Dip Nursg Mgmt), Clinical Nurse Consultant, Haemophilia Centre, VIC
Leonie Mudge, Senior Social Worker, Haemophilia, NSW
Abi Polus (BSc (Hons), M.Physio (Musculoskeletal)), Senior Clinical Physiotherapist – Haemophilia, VIC

Thank you to other community members who contributed feedback on the Medicine X Facebook page.

Written by: Kim Chilman-Blair (BSc, MBChB) and Shawn deLoache
Head of Content: Amanda Langerak
Art by: Francisco Maldonado and Oscar Perez

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Legals

Haemophilia Xplained is kindly sponsored by Shire Australia
Level 39, Grosvenor Place, 225 George Street, Sydney, NSW 2000, Australia
Tel: +61 2 8019 4400 C-ANPROM/AU//0111

Shire acknowledges the sponsorship by Biogen Australia Pty Ltd in the initial development of the Haemophilia Xplained education program.

Haemophilia Xplained

First published 2015 by Medicine X Proprietary Limited (Pty Ltd),
www.medicinex.com
Republished 2017

Text copyright © 2015 and 2017 Medicine X Pty Ltd Illustrations copyright © 2015 and 2017 Medicine X Pty Ltd

Digitally produced in Australia

All rights reserved. No part of this publication may be reproduced or utilised, stored in a retrieval system, or transmitted in any form or by any means, electronic, mechanical, photocopying, recording, or by any information storage of retrieval system without the prior written permission of both the copyright owner and the developer of this work. Medicine X Pty Ltd assert to by recognised as the designer and developer of this Haemophilia Xplained Application.

Copyright © 2015 and 2017 Medicine X Pty Ltd, “Haemophilia Xplained”, “Medicine X” and logos are trademarks of Medicine X Pty Ltd and may not be copied without written permission. All rights reserved. Haemophilia Xplained Application design, logos, custom graphics, the selection and arrangement thereof, and all software are Copyright 2015 and 2017 by Medicine X Pty Ltd.

Copyright © 2015 and 2017 Medicine X Pty Ltd

Any language translations of this Haemophilia Xplained, either now or in the future, must have the permission of the author being the copyright and derivative right holder of the source language text. Responsibly for the translation into those languages contained within this Haemophilia Xplained lies entirely with the Medicine X Pty Ltd. All other trademarks, product names and company names of logos cited herein are the property of their respective owners.

Reproductions or adaptation of content in Haemophilia Xplained must acknowledge the original contributions of the Australian Haemophilia Xplained reviewers.

The information in this book is of a general nature only and not intended as a substitute for professional health advice. Nobody should act in reliance on any statement contained in this book and should always obtain specific advice from a health professional. Medicine X Pty Ltd has made reasonable efforts to ensure that the health information contained in this application is accurate and up to date. To the extent permitted by law, Medicine X Pty Ltd, it’s employees and agents accept no liability (even if negligent) for any injury, loss or damage cause by reliance on any of this information.

Digitally produced in Australia

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Haemophilia Xplained; Part 2, Pharmacokinetics (PK) Xplained is coming soon!
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